India’s rare disease care relies on crowdfunding as costly therapies outstrip public support. Government aid is capped and ...
The Indian Medical Parliamentarians Forum has urged urgent government action to prevent life-threatening treatment ...
The Indian Medical Parliamentarians’ Forum (IMPF), a cross-party collective of 45 medical professionals turned ...
A couple struggling to access a vital cancer treatment say they are "extremely stressed" by the uncertainty in its supply.
A parliamentary forum has urged urgent action on funding shortfalls and treatment delays for patients with Lysosomal Storage ...
The FDA approves the first gene therapy for a rare immune disorder, a landmark decision for genetic medicine, treatment ...
In return, Royalty will receive a 9.25% royalty on worldwide sales of tividenofusp alfa from Denali until it reaches three times the amount Royalty has handed to Denali—or, alternatively, 2.5 times ...
The FDA has placed a hold on Denali Therapeutics’ plans to launch a phase 1 rare disease trial, citing concerns about immune ...
India Today on MSN
Doctor MPs urge PM to stop treatment crisis for rare disease patients
The Indian Medical Parliamentarians’ Forum (IMPF), a group of 45 members of parliament who are also medical professionals, ...
GlobalData on MSN
Denali makes $275m funding agreement with Royalty Pharma
Denali has entered a $275m royalty funding agreement with Royalty Pharma based on future net sales of tividenofusp alfa ...
Indian Medical Parliamentarians’ Forum urges urgent government action to prevent treatment disruptions for children with rare ...
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