Columnist Ari Anderson pays tribute to his mom, who excels at many roles, including advocate, manager, teacher, and caregiver ...

Sixteen years after her daughter's diagnosis of SMA type 1, guest columnist Cherie Ehlert is no longer counting the months, ...

Cherie Ehlert lives in Vancouver, British Columbia, Canada. She is a disability advocate and created “Charlie's Angels” to ...

Columnist Helen Baldwin finds the perfect gift for her granddaughter's birthday, one of the many unexpected blessings in her ...

SMA gene therapy Zolgensma safely improved motor function in children with SMA who needed tracheostomy, a real-world study ...

Columnist Connie Chandler writes about her family's tradition of baking and decorating holiday cookies, a project that SMA ...

Fatigue in the diaphragm may contribute to breathing issues in people with spinal muscular atrophy, a new study reports.

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.

The FDA's approval of SMA treatment Itvisma marks an "important moment" for the SMA community, a Novartis executive says.